ePRO / eCOA · Patients
CuRE Compass
Patient portal — ePRO, eConsent, dosing diaries, and the patient's longitudinal health timeline.
What it does
Multilingual patient engagement: visit-anchored ePRO/eConsent, diaries, sensor ingestion, EHR timeline, and safety intake. The patient's own EHR record (via SMART on FHIR) sits alongside study-collected data — most ePRO tools only see what the study asks.
Key capabilities
- ePRO surveys + dosing diaries
- Visit-anchored ePRO scheduling (windows driven by the study visit schedule)
- Native mobile push reminders + adherence nudges (dose-due, ePRO-window, visit) with tap-to-open deep linking
- eConsent (mobile + web)
- Multilingual patient UI + per-patient ePRO instrument localization (RTL-ready, incl. Arabic)
- SMART-on-FHIR personal health record
- Longitudinal patient timeline
- Safety triage across patient-reported sources
- DHT / wearable / sensor ingestion into OMOP
- AI eConsent with comprehension assessment
- Retention & adherence-risk prediction
What sets it apart
- The patient's own EHR record (via SMART on FHIR) sits alongside study-collected data — most ePRO tools only see what the study asks.
- ePRO windows open automatically off the study's visit schedule — Control authors the schedule once and Compass opens the right survey in the right window, no manual per-patient setup.
- Patient payments, validated instruments, provisioned devices, wearable/sensor streams, safety intake, and gene-therapy long-term follow-up (up to 15 years) round out the eCOA surface.
- Each patient sees the app and their ePRO instruments in their own language, right-to-left scripts included — the UI localizes and validated instrument translations render per patient, not a US-English-only build.
- ePRO + eConsent + diaries in one app, not three vendors stitched together.
- Patient-reported signals feed safety triage automatically — a concerning report surfaces to the care team instead of waiting in an inbox.
Score a patient-reported health state, live
Complete the EQ-5D-5L instrument the way a patient would — one statement per dimension, plus the 0–100 VAS self-rating — and watch the single health-utility index recompute in your browser from a published country value set, with the per-dimension decrement breakdown, the interpretation band (including the worse-than-dead region below zero), and a value-set switcher that re-weights the same health state by country.
Pick the one statement that best describes you in each group, then rate your overall health on the scale.
I have slight problems walking
I have no problems washing or dressing myself
I have slight problems doing my usual activities
I have slight pain or discomfort
I am slightly anxious or depressed
0 = the worst health you can imagine · 100 = the best. Reported alongside the index, not folded into it.
Devlin et al. 2018 (Health Econ 27:7–22)
How the index is built · 1 − Σ decrements
Each level above 1 subtracts its published dimension decrement from full health. Level-1 dimensions contribute nothing. This is the exact additive value-set model — the number is a preference-weighted utility, not a symptom count.
Same health state, every value set
| Country | Index | Band | Citation |
|---|---|---|---|
| England | 0.751 | Mild impairment | Devlin et al. 2018 (Health Econ 27:7–22) |
| Netherlands | 0.743 | Moderate impairment | Versteegh et al. 2016 (Value Health 19:343–52) |
The same 5-digit profile scores differently by country — value sets encode a population's preferences, so a health state Dutch respondents weight more heavily lands lower there than in England. Every index above is computed in your browser from the published coefficient tables — no backend.
Why this is more than a toy
The index here is the exact published EQ-5D-5L additive value-set model — England (Devlin et al. 2018, the NICE reference set) and the Netherlands (Versteegh et al. 2016), with the coefficient tables transcribed verbatim from the NICE value-set reference. A 5-digit profile becomes a single preference-weighted utility anchored at 1 = full health and 0 = dead, validated so 11111 scores exactly 1.000 and 55555 reproduces each set's published worst-state anchor. In the product, CuRE Compass administers validated ePRO instruments to patients and scores them in its ePRO scoring service (apps/compass/…/epro/scoring-service.ts) — this is the EQ-5D-5L utility index on that service's roadmap, running here entirely client-side on synthetic responses. No backend, no patient data.
See CuRE Compass in action
Every research ecosystem is unique. Let's discuss how CuRE can be configured for your needs.